Director, Programs & Community Engagement
- Employer
- University of Pennsylvania
- Location
- Translational Research Laboratories
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- Administrative Jobs
- Institutional & Business Affairs, Communications & Marketing, Program Administration
- Employment Type
- Full Time
- Institution Type
- Four-Year Institution
Job Details
Job location: Translational Research Laboratories
Employment Type: Full-time
Posted data: 2019-09-12
Req: JR00007820
University OverviewThe University of Pennsylvania, the largest private employer in Philadelphia, is a world-renowned leader in education, research, and innovation. This historic, Ivy League school consistently ranks among the top 10 universities in the annual U.S. News & World Report survey. Penn has 12 highly-regarded schools that provide opportunities for undergraduate, graduate and continuing education, all influenced by Penn’s distinctive interdisciplinary approach to scholarship and learning.Penn offers a unique working environment within the city of Philadelphia. The University is situated on a beautiful urban campus, with easy access to a range of educational, cultural, and recreational activities. With its historical significance and landmarks, lively cultural offerings, and wide variety of atmospheres, Philadelphia is the perfect place to call home for work and play.The University offers a competitive benefits package that includes excellent healthcare and tuition benefits for employees and their families, generous retirement benefits, a wide variety of professional development opportunities, supportive work and family benefits, a wealth of health and wellness programs and resources, and much more.Posted Job TitleDirector, Programs & Community EngagementJob Profile TitleDirector BJob Description SummaryThe Perelman School of Medicine at the University of Pennsylvania is the oldest and one of the finest medical schools in the United States. Penn is rich in tradition and heritage and at the same time consistently at the forefront of new developments and innovations in medical education and research. Since its founding in 1765 the School has been a strong presence in the community and prides itself on educating the leaders of tomorrow in patient care, biomedical research, and medical education. http://www.med.upenn.edu/Job Description
Orphan diseases represent a collection of disorders that afflict fewer than 200,000 individuals for any single disease type, yet there are more than 7,000 distinct orphan diseases. The Orphan Disease Center (ODC) in the Perelman School of Medicine was founded in 2011 to promote and fund research in rare diseases globally, beyond Penn, making a difference for these under-served patient populations. A unique aspect of ODC is that it is a ‘Center without walls’ which sources and contributes to developing transformative therapies through the use of platform technologies and of research strategies that can be deployed across multiple rare disease programs. The main feature is a pilot grant program which provides $8M annually to over 35 global institutions.
We are currently seeking a Director, Programs & Community Engagement to design clinical development plans for multiple high-priority programs within the ODC.
Reporting to the Executive Director of the Orphan Disease Center (ODC), the Director, Programs & Community Engagement is responsible for managing multiple programs and initiatives to engage the research-focused rare disease community: community & patient engagement, external grant programs, philanthropic activities, communications and marketing.
As Director, Programs & Community Engagement, you will be responsible for overseeing and coordinating all community engagement and patient relations activities for the Orphan Disease Center (ODC) at the University of Pennsylvania. This includes leading efforts to identify, develop, improve, deliver, and execute patient engagement and outreach strategies for the ODC. Key responsibilities in this area include:
• Establish recognition within the rare disease community as a leader for the ODC.
• Partner with ODC leadership to identify, determine, review and implement appropriate outreach strategies to promote research community and patient engagement.
• Establish collaborative and productive working relationships with a wide range of community organizations, patient advocacy groups, local/global agencies, research community, key opinion leaders, and other key constituents to further goals surrounding patient advocacy and community outreach.
• Coordinate meetings and forums with rare disease community stakeholders as a method of engaging in bi-directional communication and awareness of the ODC.
• Lead efforts to translate strategy development into effective planning, development, execution, and evaluation of rare disease community engagement and program marketing initiatives, which includes the creation and maintenance of web pages for the ODC.
• Remain abreast of new developments in the communities we serve to identify potential business development or partnership opportunities.
You will provide oversight and accountability for the successful execution of MDBR and all MDBR-related events, several scientific symposia, think tank, and advisory board meetings per year, and multiple grant programs.
Additionally, you will supervise and manage a Project Coordinator to support you in the execution of the outlined objectives.
Bachelor’s degree with minimum of 5 to 7 years of professional experience or an equivalent combination of education and experience is required
Penn adheres to a policy that prohibits discrimination on the basis of race, color, sex, sexual orientation, gender identity, religion, creed, national or ethnic origin, citizenship status, age, disability, veteran status, or any other legally protected class.Special Requirements
Background check required after a conditional job offer is made. Consideration of the background check will be tailored to the requirements of the job.
Organization
Welcome to the University of Pennsylvania! Penn is the largest private employer in Philadelphia and is a world-renowned leader in education, research, and innovation.
Across our 12 highly-regarded schools, more than 25,000 students, and more than 4,000 faculty members, we become one university: a wide-ranging, ever-changing community that draws its strength from a multitude of races, ethnicities, genders, sexual orientations, historical traditions, ages, religions, disabilities, veteran status, interests, perspectives, and socioeconomic backgrounds.
Penn carries on the principles and spirit of its founder, Benjamin Franklin: entrepreneurship, innovation, invention, outreach, and a pragmatic love of knowledge. Franklin's practical outlook has remained a driving force in the university's development. To learn more, visit About Penn.
Vision
As engines of knowledge and new ideas, universities have the unique potential to define the future rather than be defined by it; to pioneer change rather than merely manage it. To do so requires a plan both visionary and pragmatic. The Penn Compact 2022 motivates community members to innovate, be radically inclusive, and positively impact their local, national, and global communities.
Penn’s fundamental priorities — increasing access, integrating knowledge and engaging locally, nationally and globally — are supported by the three core values that make us uniquely Penn: inclusion, innovation, and impact.
Learn about the signature initiatives of the Penn Compact 2022:
- Global Connections President’s Engagement Prizes President's Innovation Prize Penn Integrates Knowledge University Professors
Diversity
Understanding and appreciating diversity is one of Penn's most important priorities and is fundamental to success in today's world.
Penn adheres to a policy that prohibits discrimination on the basis of race, color, sex, sexual orientation, gender identity, religion, creed, national or ethnic origin, citizenship status, age, disability, veteran status, or any other legally protected class.
To learn more about Diversity and Inclusion at Penn visit:
- Diversity at Penn Resources Supporting Diversity Penn Diversity Facts and Figures Penn's Diversity Timeline 1740-1997
Benefits
Penn offers a wide range of benefits and perks - from Penn's retirement Matching Plan to bike repair stations to access to the full LinkedIn Learning library to adoption assistance to workshops at the letterpress and book arts studio and much more!
- Penn HR Benefits Be in the Know Wellness Campaign Penn Home Ownership Services Campus Shuttles & Buses Resources for Cyclists Deals@Penn Common Press
Campus and Beyond
We invite you to explore our campus and its stately buildings and state-of-the-art facilities.
- Penn Park Morris Arboretum Penn Campus Arboretum: 6,800 Campus Trees Penn Recreation Penn Libraries Shop Penn
Try our self-guided tour! Come and visit!
Learn about sustainability at Penn.
News
Stay up-to-date with Penn's response to COVID-19: Coronavirus Information & Resources.
Penn supports news publications that tell the ongoing story of the University community, communications services for external media, telephone and video services, and other media resources: Campus Media
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- Telephone
- (215) 898-7372
- Location
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3451 Walnut Street
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PA
19104
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