Job description

Duties: Manage day-to-day operations of clinical trials by recruiting and consenting patients, coordinating conduct of studies, facilitating data collection, maintaining databases and study files, ensuring data accuracy, and integrating patient data for second largest CMT center in the United States. Participate in outpatient clinic with PI. Train and manage part-time, work-study, and temporary staff. Order genetic testing and facilitate recruitment of affected and unaffected family members. Manage genetic data and analyze via Genesis for discovery and publication. Manage international sample collection and distribution across the world. Properly label, handle, and store human blood samples. Respond to queries from healthcare professionals and patients via the website and telephone. Act as liaison between Principal Investigator and Rare Diseases Clinical Research Network (RDCRN). Attend investigator and coordinator meetings. Prepare drafts, grant applications, abstracts for scientific meetings, and publications. Perform literature reviews. Work with Principal Investigator to develop and maintain a comprehensive and accurate website on inherited neuropathies. Manage and oversee web design and implementation. Meet with technical support, web designers, and contributors.

Position is contingent on continued funding.

Qualifications: A Bachelor's Degree and 2-4 years of experience or an equivalent combination of education and experience required. Must be able to manage the day-to-day operations of large clinical trials with multiple sub-studies. Must have strong educational basis in biology and genetics. The incumbent should possess the necessary experience to develop and maintain a comprehensive and accurate website on inherited neuropathies. Organizational and interpersonal skills required.

Reference Number: 40-29527

Salary Grade: 026

Employment Type: Exempt

Org: NE-Neurology

Special Requirements:

Job Family: I-Technical/Professional Research




Diversity Profile: University



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Job No:
Posted: 9/9/2018
Application Due: 1/10/2019
Work Type: